Chromosome Disorder Outreach Video on YouTube starring 'Niko'
http://bit.ly/kvrNZO
Below are all the Resources that I have found helpful.
Websites:
www.rarechromo.org - UNIQUE Rare Chromosome Disorder Support Group
www.chromodisorder.org - Chromosome Disorder Outreach, Inc
www.php.com - Parents Helping Parents
www.netnet.net/mums - MUMS National Parent to Parent Network
www.spdfoundation.net - Sensory Processing Disorder Foundation
www.dds.ca.gov/rc/rclist.cfm - State of CA Dept of Developmental Services
www.beyondplay.com - Products for early childhood and special needs
www.zerotothree.org - National center for infants, toddler and families
http://health.groups.yahoo.com/group/chromosomedeletionoutreach/ - Chromosome Disorder Outreach Yahoo group
http://rarediseases.info.nih.gov/GARD/Condition/10813/1q211_microdeletion_syndrome.aspx - 1q21.1 microdeletion syndrome
http://jgregorysharingsstories.blogspot.com/- A fellow Mother blogs about her daughter Chrissy with 1q21.1
http://deletion1q21-1.blogspot.com/2010/03/notre-histoire-notre-histoire-commence_19.html?spref=bl- Another brave Mother blogs about her daughter Laura with 1q21.1
Articles:
www.en.wikipedia.org/wiki/1q21.1_deletion_syndrome - Wikipedia definition of 1q21.1 Deletion Syndrome
http://ghr.nlm.nih.gov/condition/1q211-microdeletion?wf=1 - 1q21.1 Genetics Home Reference
www.ghr.nlm.nih.gov/chromosome/1 - Chromosome 1 Genetics Home Reference
www.ncbi.nlm.nih.gov/omim/612474 - Chromosome 1q21.1 Deletion Syndrome, 1.35-Mb
www.ncbi.nlm.nih.gov/books/nbk52787/ - 1q21 Microdeletion
www.ncbi.nlm.nih.gov/omim/274000 - Chromosome 1q21.1 Deletion Syndrome and Tar Syndrome
www.ncbi.nlm.nih.gov/pmc/articles/pmc2680128/ - Recurrent reciprocal 1q21.1 deletions and duplications associated with microcephaly and macrocephaly and developmental and behavioral abnormalities
http://www.nature.com/nature/journal/v455/n7215/abs/nature07458.html - Copy number variations associated with neuropsychiatric conditions
www.physorg.com/news140286996.html - Aberrations in region of chromosome 1q21.1 associated with broad range of disorders in children
http://circres.ahajournals.org/cgi/content/full/94/11/1429 - Chromosome 1q21.1 Contiguous gene deletion is associated with congenital heart disease
www.ncbi.nlm.nih.gov/pmc/articles/pmc2703742 - Recurrent rearrangements of Chromosome 1q21.1 and variable pediatric phenotypes
Books:
The Out of Sync Child, Carol Stock Kranowitz
Sensational Kids, Lucy Jane Miller
Just Take A Bite, Lori Ernsperger
http://bit.ly/kvrNZO
Below are all the Resources that I have found helpful.
Websites:
www.rarechromo.org - UNIQUE Rare Chromosome Disorder Support Group
www.chromodisorder.org - Chromosome Disorder Outreach, Inc
www.php.com - Parents Helping Parents
www.netnet.net/mums - MUMS National Parent to Parent Network
www.spdfoundation.net - Sensory Processing Disorder Foundation
www.dds.ca.gov/rc/rclist.cfm - State of CA Dept of Developmental Services
www.beyondplay.com - Products for early childhood and special needs
www.zerotothree.org - National center for infants, toddler and families
http://health.groups.yahoo.com/group/chromosomedeletionoutreach/ - Chromosome Disorder Outreach Yahoo group
http://rarediseases.info.nih.gov/GARD/Condition/10813/1q211_microdeletion_syndrome.aspx - 1q21.1 microdeletion syndrome
http://jgregorysharingsstories.blogspot.com/- A fellow Mother blogs about her daughter Chrissy with 1q21.1
http://deletion1q21-1.blogspot.com/2010/03/notre-histoire-notre-histoire-commence_19.html?spref=bl- Another brave Mother blogs about her daughter Laura with 1q21.1
Articles:
www.en.wikipedia.org/wiki/1q21.1_deletion_syndrome - Wikipedia definition of 1q21.1 Deletion Syndrome
http://ghr.nlm.nih.gov/condition/1q211-microdeletion?wf=1 - 1q21.1 Genetics Home Reference
www.ghr.nlm.nih.gov/chromosome/1 - Chromosome 1 Genetics Home Reference
www.ncbi.nlm.nih.gov/omim/612474 - Chromosome 1q21.1 Deletion Syndrome, 1.35-Mb
www.ncbi.nlm.nih.gov/books/nbk52787/ - 1q21 Microdeletion
www.ncbi.nlm.nih.gov/omim/274000 - Chromosome 1q21.1 Deletion Syndrome and Tar Syndrome
www.ncbi.nlm.nih.gov/pmc/articles/pmc2680128/ - Recurrent reciprocal 1q21.1 deletions and duplications associated with microcephaly and macrocephaly and developmental and behavioral abnormalities
http://www.nature.com/nature/journal/v455/n7215/abs/nature07458.html - Copy number variations associated with neuropsychiatric conditions
www.physorg.com/news140286996.html - Aberrations in region of chromosome 1q21.1 associated with broad range of disorders in children
http://circres.ahajournals.org/cgi/content/full/94/11/1429 - Chromosome 1q21.1 Contiguous gene deletion is associated with congenital heart disease
www.ncbi.nlm.nih.gov/pmc/articles/pmc2703742 - Recurrent rearrangements of Chromosome 1q21.1 and variable pediatric phenotypes
Books:
The Out of Sync Child, Carol Stock Kranowitz
Sensational Kids, Lucy Jane Miller
Just Take A Bite, Lori Ernsperger